Pompe-Disease.eu provides comprehensive information on the disease, as well as resources and support to help manage the challenges it may bring.



June 3 2016

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Patient Stories







Dione - Pompe patient

Taking care of your family members who have Pompe disease isn't always easy. Here are some resources with more information for patients and care givers. 

Healthcare professional?

Learn about causes, diagnosis and managment of Pompe Disease.

Learn more